A few days before Christmas I had a really bad flare in SI joint pain. I figured out it was SI joint pain thanks to some friends who have more of an understanding of anatomy than I do. (I almost wish I’d taken anatomy in college, almost.) Possible piriformis syndrome accompanied this for a few days as well. I treated the muscle problems, as they resolved it turned into a headache that lasted from Sunday to Tuesday afternoon because the new migraine meds I tried didn’t exactly work. Tuesday was tricky. Wednesday was better because there was less pain but I still had a low grade headache that seemed to be connected to fatigue levels. (Also had a 2 hour nap on Wednesday.)

Now it’s Thursday and I’m realizing the only thing that has improved is the pain levels. I’ve had tingles, chills, pins and needles, fatigue, nausea, an increase in appetite, way major brain fog, more fatigue, bladder problems multiple nights, regular levels of pain, abnormal levels of pain, muscle spasms, worse muscle rigidity and now on top of it the “OMGIT’SACOLD” immune system response is coming back. I took some prednisone middle of December to get all that to stop and it did. BUT it’s coming back. (I had a cold after being at a beer and music festival 11/1/2014.) I have no cold! Body! There is no cold! Calm thyself! Citizen! Enhance your calm!

I said fuck it and took some nyquil tonight. I’m not sick but it’ll help the symptoms. Maybe with a full night’s rest something will calm down.

Earlier I had a crazy prednisone type hunger – but no changes in medicine and definitely no prednisone.

My body is cycling through as many different issues/problems/symptoms/things/pains that it can come up with.

Five more days until my next appointment with the neurologist. I’ll wait till tomorrow morning to decide if I should call the neurologist tomorrow.

4 thoughts on “All of the Immune symptoms

  1. Ugh! I’m so sorry you are feeling that way! I empathize- New Year’s Eve I felt like that all day- I’m starting to feel a touch better now (3 days later). It’s like my body has decided it has the flu. It doesn’t, but it acts like it does. I’ve decided I have a paranoid immune system- it over-reacts to the slightest thing. It’s the equivalent of a homeowner using a Uzi to get rid of a squirrel in the backyard….you may or may not get the squirrel, but you will do a huge amount if damage in the meantime!!!

    I hope that your 2015 gets better from here!


  2. Ugh, sorry it’s been so rough for you lately! I get that prednisone type hunger sometimes during autoimmune flares, too. We used to call it the “gluten hunger” because it always happened when I had gotten glutened, but we’ve realized now it happens when my MG is flaring too. I don’t know what it is, but it really sucks.

    1. Oh! Thank you for reminding me. I used to get “gluten hunger” so yea, it must be an autoimmune thing for sure. I feel less crazy now.

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